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Author Dr. Richard Karlen and His Wife Hiroko Karlen
Richard R. Karlen grew up in Newark, New Jersey, where he later
practiced dentistry for thirty-five years. He currently lives in Scotch Plains, New Jersey
with his wife, daughter and twin grandchildren. His most recent novel, LOOKING FOR BERNIE
will be published by Ironbound Press in the spring of 1999.
Authors Note
I first became aware of Huntingtons Disease in the mid
1980s, when a close friend, who was at risk for HD began to behave
uncharacteristically. He was alternately seen as being "stressed out",
"depressed", "phobic. " I witnessed over the course of several years
the unhappy effects that his bizarre behavior had upon his family, until a definitive
diagnosis of HD was finally confirmed. While it was this experience that led me to write
DEVILS DANCE, it should be noted that DEVILS DANCE is not biographical, and
that the story and characters in this book are fictitious and should not be considered
representative of HD victims and their families.
The action of DEVILS DANCE takes place in the early
1980s. Since it wasnt until 1983 when there was an initial genetic
breakthrough in the discovery of a DNA marker near the Huntington Gene, and in 1993 when
the gene, itself, was discovered, it is not unfair to state that DEVILS DANCE is in
a very real sense an historical novel. Today, not only can a diagnosis be made with HD
quickly and with little margin of error, but with the advent of new drugs and a better
understanding of the disease, there has been considerable progress in treatment. We see HD
patients living longer and with an improved quality of life than existed previously, and
it is not unreasonable to believe that one day a cure will be found for this terrible
illness. Hopefully, DEVILS DANCE will bring to the public a greater awareness of HD,
and thus be of some assistance in hastening that day.
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